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Article #109: Alzheimer's Disease: What Every Family Needs to Know

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Alzheimer's disease touches the lives of in their loved one may be dismissed as
millions of Americans. Today, some 4.5 simply a part of getting old. As a
million Americans suffer from result, family members often overlook the
Alzheimer's, and 1 in 10 families have a earliest signs of mental deterioration.
loved one afflicted with it. With no They become concerned and seek outside
cure in sight, it is important for help only after they begin to notice the
families to arm themselves with more obvious changes in behavior or
information about this devastating personality. By then, Alzheimer's has
disease. probably progressed to the point where
* Alzheimer's disease begins slowly. their loved one can no longer live
Like a stroke, Alzheimer's kills brain independently.
cells. Unlike a stroke, however, * Families must be prepared for what is
Alzheimer's does not strike suddenly. going to happen.
And, its effects are more far-ranging. Whenever the diagnosis of Alzheimer's is
Experts like to say that Alzheimer's has finally made, it is important for family
an insidious onset. This means simply members to understand that this is not a
that the disease starts slowly and disease that can be cured or reversed.
unfolds very gradually. So gradually, in The fact is, individuals who have
fact, that the person who has Alzheimer's Alzheimer's will spiral downward toward
may not realize that anything is wrong total care and, ultimately, death. It
until a great deal of brain tissue has may take years, but individuals who have
been destroyed. Alzheimer's will eventually lose
* Early symptoms reflect what is everything that defines their personhood.
happening inside the brain. Among other things, their ability to
Alzheimer's disease attacks tissue deep communicate will continue to decline.
within the brain and spreads out to They will lose the ability to dress and
include all those regions associated with groom themselves. They will need
complex thinking and learning; those assistance using the toilet. They may
regions of the brain that make us begin to wander and to experience
uniquely human. As the path of hallucinations. In the final stages of
destruction widens, individuals who have the disease, individuals afflicted with
Alzheimer's will eventually notice that Alzheimer's will be unable to recognize a
their thinking skills are deteriorating. spouse or a child. Motor skills will
More often than not, they will notice decline so much that they will be unable
that their memory is failing. But, it is to walk or to feed themselves. They will
not just a series of senior moments. lose all control of bowel and bladder.
Individuals stricken by Alzheimer's will Eventually, all body systems will shut
have more than a little difficulty down.
finding the right words to express their * Families must be willing to reach out
thoughts and feeling. They may forget the for help.
names of familiar places and long-term Families need to think carefully about
acquaintances. They are likely to forget the amount of assistance they are willing
long standing appointments. To and able to provide. Affection for the
compensate for these everyday losses, afflicted individual, as well as a sense
they may withdraw from friends and avoid of obligation, can initially blind family
social gatherings. Their homes may members to the harsh realities of caring
become littered with notes and other for their loved one. Families must
reminders as they struggle to overcome understand that the kind of care required
their memory losses. will become more and more demanding.
* Alzheimer's disease affects personality Worse, they will have to watch as the
and behavior. deterioration takes place. Among family
Interestingly, even as problems caregivers, stress reactions can be quite
accumulate, many individuals will severe and depression is very common. To
actively deny their difficulties. Denial cope, family caregivers must seek help
is a common way of coping in the earliest from their larger community. The local
stages of Alzheimer's. It is a defense Alzheimer's Association should be their
mechanism that helps to preserve a sense first stop. It is the best single
of self-worth, which becomes increasingly resource available. The local
fragile as thinking skills fail. Alzheimer's Association can direct
Unfortunately, denial does not "work" families to a variety of services and
forever or for everyone. When denial no assistance. For example, many
longer works, some individuals sink into communities have respite programs to give
depression. Others may react with angry families a short break from care giving.
outbursts, even rage, in the face of Adult daycare also may be available to
everyday frustrations. It is especially provide care during the day while family
common for individuals afflicted with caregivers continue with their regular
Alzheimer's to develop a kind of apathy. jobs. Often times, special support
They lose interest in those things that groups are available to help caregivers
used to bring them joy. deal with the depression and other
* Early signs of Alzheimer's may go negative emotions that can develop over
unrecognized by family members. time. In any case, families of persons
Families often engage in their own form afflicted with Alzheimer's disease do not
of denial when it comes to Alzheimer's in have to go it alone. Help is available.
a loved one. Significant memory problems






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